CAPS: Rarely Discussed

Because CAPS is so rare, few doctors have treated patients with these diseases.

Mild symptoms, such as headache and fever, can appear to be due to other things. It can take some time before a doctor begins to think about CAPS because it is not something the doctor sees every day.

Patients who have milder symptoms of CAPS may think their symptoms are due to a virus and may not seek medical attention.

Only a doctor can determine whether a person has CAPS, so patients should discuss all symptoms with their doctors. In addition to other tests, there is a genetic screening that can help doctors to diagnose CAPS.