CAPS Family Connections

CAPS (Cryopyrin-Associated Periodic Syndrome): Rarely Discussed

Because CAPS (cryopyrin-associated periodic syndrome) is so rare, few doctors have treated patients with these diseases.

Mild symptoms, such as headache and fever, can appear to be due to other things. It can take some time before a doctor begins to think about CAPS (cryopyrin-associated periodic syndrome) because it is not something the doctor sees every day.

Patients who have milder symptoms of CAPS (cryopyrin-associated periodic syndrome) may think their symptoms are due to a virus and may not seek medical attention.

Only a doctor can determine whether a person has CAPS (cryopyrin-associated periodic syndrome), so patients should discuss all symptoms with their doctors. In addition to other tests, there is a genetic screening that can help doctors to diagnose CAPS (cryopyrin-associated periodic syndrome).