CAPS (Cryopyrin-Associated Periodic Syndrome)–Helpful Links

Resources

There are support groups and organizations online that offer additional information about CAPS (cryopyrin-associated periodic syndrome). The main goal of these groups is to help people understand these diseases and help improve the lives of people with CAPS (cryopyrin-associated periodic syndrome).

Ongoing Updates for New Users

Complete the Screener and print to discuss with your physician. Also, register to receive ongoing updates about CAPS (cryopyrin-associated periodic syndrome).

Support Groups and Organizations

Visit any of the sites below to learn more:

CAPS Connect USA

Join CAPS Connect USA to share your experiences:

  • This site helps people living with CAPS (cryopyrin-associated periodic syndrome) and healthcare professionals get connected

Patients and their caregivers can:

  • Locate other CAPS (cryopyrin-associated periodic syndrome) patients and caregivers across the United States with similar interests
  • Share inspirational stories about their disease
  • Communicate with others
  • Identify physicians familiar with CAPS (cryopyrin-associated periodic syndrome)

Healthcare professionals can:

  • Identify themselves as a healthcare professional familiar with CAPS (cryopyrin-associated periodic syndrome)
  • Communicate with other healthcare professionals

Patient Brochure

Download an educational patient brochure on CAPS (cryopyrin-associated periodic syndrome) brought to you by Novartis Pharmaceuticals Corporation.

By browsing the Internet, you may come across other Web sites that support CAPS (cryopyrin-associated periodic syndrome) and allow people with CAPS (cryopyrin-associated periodic syndrome) to share their experiences. However, your doctor's advice is the best advice to follow.